Participation in patient support forums may put rare disease patient data at risk of re-identification

Emergency Medicine specialty May Improve Patient Satisfaction

Asymptomatic Patient at Risk for CAD Clinical Condition: Asymptomatic Patient at Risk for Coronary Artery Disease

Understaffed transfer services may put infants' lives at risk.

SPECIALIST NEONATAL transport services are essential parts of care provision for sick and premature babies. But, according to a report from the charity Bliss, such transfers are too often 'understaffed, under-resourced and part time'.

Assessing Patient Participation in Health Policy Decision-Making in Cyprus

Although the importance of patient participation in the design and evaluation of health programs and services is well-documented, there is scarcity of research with regard to patient association (PA) participation in health policy decision-making processes. To this end, the present study aimed to validate further a previously developed instrument as well as to investigate the degree of PA parti...

A Rare Disease Patient Manager

The personal health implications behind rare diseases are seldom considered in widespread medical care. The low incidence rate and complex treatment process makes rare disease research an underrated field in the life sciences. However, it is in these particular conditions that the strongest relations between genotypes and phenotypes are identified. The rare disease patient manager, detailed in ...